Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study

Noémie Resseguier 1 Natacha Rosso-Delsemme Any Beltran Anzola Karine Baumstarck 2 Vanessa Milien Laurent Ardillon Sophie Bayart 3 Claire Berger Marie-Anne Bertrand Christine Biron-Andréani 4 Annie Borel-Derlon 5 Sabine Castet Pierre Chamouni 6 Ségolène Claeyssens Donadel Emmanuelle de Raucourt 7 Dominique Desprez Céline Falaise 8 Birgit Frotscher 9 Valérie Gay 10 Jenny Goudemand 11 Yves Gruel 12 Benoît Guillet 13 Annie Harroche Abel Hassoun Yoann Huguenin Thierry Lambert 14 Aurélien Lebreton 15 Anne Lienhart Michèle Martin 16 Sandrine Meunier 17 Fabrice Monpoux Guillaume Mourey 18 Claude Negrier 19 Philippe Nguyen Placide Nyombe Caroline Oudot 20 Brigitte Pan-Petesch 21, 22, 23 Benoit Polack 24 Anne Rafowicz Antoine Rauch Delphine Rivaud Pascale Schneider 25 Alexandra Spiegel Cecile Stoven Brigitte Tardy 26 Marc Trossaërt 27 Jean-Baptiste Valentin Stéphane Vanderbecken Fabienne Volot Anne Voyer-Ebrard Bénédicte Wibaut Tanguy Leroy 28 Thomas Sannie Hervé Chambost 29 Pascal Auquier 30
24 TIMC-IMAG-TheREx - Thérapeutique Recombinante Expérimentale
TIMC-IMAG - Techniques de l'Ingénierie Médicale et de la Complexité - Informatique, Mathématiques et Applications, Grenoble - UMR 5525
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Noémie Resseguier, Natacha Rosso-Delsemme, Any Beltran Anzola, Karine Baumstarck, Vanessa Milien, et al.. Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): study protocol for a multicentric French national observational cross-sectional study. BMJ Open, BMJ Publishing Group, 2018, 8 (7), pp.e022409. ⟨10.1136/bmjopen-2018-022409⟩. ⟨hal-02057702⟩

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